Our son Jaxon was born with a genetic condition called Hurler's Syndrome. He was diagnosed at 13 months of age. Jaxon is missing an enzyme that breaks down the sugar molecules, causing these molecules to be stored in various parts of the body. Left untreated these deposits will cause severe damage to the joints, brain, heart, liver and spleen. Generally these kids live to age 8 - 10 and die from heart failure or hydrocephalus. The only treatment for Hurler Syndrome is a Bone Marrow Transplant (BMT). This is a risky procedure that will hopefully benefit Jaxon. Through the grace of God Daysia has been found to be a 6 out of 6 match. Recovery time will be 2-6 months in the hospital depending on how Jaxon does.
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